TY - JOUR
T1 - When a child is sick
T2 - The role of social tourism in palliative and end-of-life care
AU - Hunter-Jones, Philippa
AU - Sudbury-Riley, Lynn
AU - Al-Abdin, Ahmed
AU - Menzies, Laura
AU - Neary, Katie
N1 - Funding Information:
The authors are grateful to Red Hospice and all who gave their precious time so willingly to this study. Thank-you for trusting us with it. We thank also the University of Liverpool (impact funding streams) who funded this project.
Publisher Copyright:
© 2020
PY - 2020/7
Y1 - 2020/7
N2 - Drawing upon transformative service research and social tourism literature, this paper explores the relationship between respite care and childhood illness. It focuses specifically upon the short break opportunities attached to respite care offered in children's hospices in the United Kingdom. Pathographies (illness narratives), shared by patients, siblings and family (n = 23), provide unique insights into ways in which each participate in respite care. Participation prompts inclusivity and normality. It offers a break from illness, and contributes to uplifting feelings of optimism, escapism and new beginnings. Conclusions drawn argue the need for healthcare policy to move beyond ‘Dying Well’ narratives into ones which celebrate ‘Living Well with Dying’. Tourism participation has much to offer such a progressive healthcare policy.
AB - Drawing upon transformative service research and social tourism literature, this paper explores the relationship between respite care and childhood illness. It focuses specifically upon the short break opportunities attached to respite care offered in children's hospices in the United Kingdom. Pathographies (illness narratives), shared by patients, siblings and family (n = 23), provide unique insights into ways in which each participate in respite care. Participation prompts inclusivity and normality. It offers a break from illness, and contributes to uplifting feelings of optimism, escapism and new beginnings. Conclusions drawn argue the need for healthcare policy to move beyond ‘Dying Well’ narratives into ones which celebrate ‘Living Well with Dying’. Tourism participation has much to offer such a progressive healthcare policy.
KW - Carers
KW - Children
KW - Families
KW - Hospices
KW - Terminal illness
KW - Transformative service research
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U2 - 10.1016/j.annals.2020.102900
DO - 10.1016/j.annals.2020.102900
M3 - Article
AN - SCOPUS:85081702438
SN - 0160-7383
VL - 83
JO - Annals of Tourism Research
JF - Annals of Tourism Research
M1 - 102900
ER -