When a child is sick: The role of social tourism in palliative and end-of-life care

Philippa Hunter-Jones*, Lynn Sudbury-Riley, Ahmed Al-Abdin, Laura Menzies, Katie Neary

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

4 Citations (Scopus)

Abstract

Drawing upon transformative service research and social tourism literature, this paper explores the relationship between respite care and childhood illness. It focuses specifically upon the short break opportunities attached to respite care offered in children's hospices in the United Kingdom. Pathographies (illness narratives), shared by patients, siblings and family (n = 23), provide unique insights into ways in which each participate in respite care. Participation prompts inclusivity and normality. It offers a break from illness, and contributes to uplifting feelings of optimism, escapism and new beginnings. Conclusions drawn argue the need for healthcare policy to move beyond ‘Dying Well’ narratives into ones which celebrate ‘Living Well with Dying’. Tourism participation has much to offer such a progressive healthcare policy.

Original languageEnglish
Article number102900
JournalAnnals of Tourism Research
Volume83
DOIs
Publication statusPublished - Jul 2020
Externally publishedYes

Keywords

  • Carers
  • Children
  • Families
  • Hospices
  • Terminal illness
  • Transformative service research

ASJC Scopus subject areas

  • Development
  • Tourism, Leisure and Hospitality Management

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