The Omani Arabic version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

For the Paediatric Rheumatology International Trials Organisation (PRINTO)

Research output: Contribution to journalArticle

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Omani Arabic language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 57 JIA patients (22.8% systemic, 28.1% oligoarticular, 35.1% RF negative polyarthritis, 14.0% other categories) and 85 healthy children, were enrolled in two centres. Notably, none of the enrolled JIA patients is affected with enthesitis-related arthritis or undifferentiated arthritis. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed satisfactory psychometric performances. In conclusion, the Omani Arabic version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

Original languageEnglish
Pages (from-to)299-306
Number of pages8
JournalRheumatology International
Volume38
DOIs
Publication statusPublished - Apr 1 2018

Fingerprint

Juvenile Arthritis
Arthritis
Psychometrics
Parents
Reproducibility of Results

Keywords

  • Disease status
  • Functional ability
  • Health related quality of life
  • JAMAR
  • Juvenile idiopathic arthritis

ASJC Scopus subject areas

  • Rheumatology
  • Immunology and Allergy
  • Immunology

Cite this

The Omani Arabic version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR). / For the Paediatric Rheumatology International Trials Organisation (PRINTO).

In: Rheumatology International, Vol. 38, 01.04.2018, p. 299-306.

Research output: Contribution to journalArticle

For the Paediatric Rheumatology International Trials Organisation (PRINTO) 2018, 'The Omani Arabic version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)', Rheumatology International, vol. 38, pp. 299-306. https://doi.org/10.1007/s00296-018-3965-9
For the Paediatric Rheumatology International Trials Organisation (PRINTO). / The Omani Arabic version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR). In: Rheumatology International. 2018 ; Vol. 38. pp. 299-306.
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abstract = "The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Omani Arabic language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 57 JIA patients (22.8{\%} systemic, 28.1{\%} oligoarticular, 35.1{\%} RF negative polyarthritis, 14.0{\%} other categories) and 85 healthy children, were enrolled in two centres. Notably, none of the enrolled JIA patients is affected with enthesitis-related arthritis or undifferentiated arthritis. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed satisfactory psychometric performances. In conclusion, the Omani Arabic version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.",
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