TY - JOUR
T1 - Parenting a child with metabolic diseases
T2 - Impact on health related quality of life of parents
AU - Shaji Thomas, Deepa
AU - Mohd Wali Shakman, Lina
AU - Saraswathy, Kannekanty
AU - Arulappan, Judie
N1 - Publisher Copyright:
© 2016 Diabetes India
PY - 2017/1/1
Y1 - 2017/1/1
N2 - The study was conducted to assess the health related quality of life of the parents of children with inborn errors of metabolism (IEM). The study was conducted at the Genetic and metabolic outpatient department of Sultan Qaboos University Hospital, Oman. The parents of children with metabolic diseases who were accompanying their children to the outpatient clinics were the samples. An explorative descriptive survey design and Convenient sampling technique were used to select the sample. Study included 72 parents of children with metabolic diseases aged between 20 and 55 years. The RAND 36-Item Health Survey version was used to assess the health related quality of life of parents. The results shows lower mean scores in subscales of ‘general health’ and vitality. Parents with higher educational levels showed higher levels of PCS and MCS scores than parents with lower educational levels. Parents with higher monthly income and younger age showed higher quality of life. A significant association was found between supporting persons and HQoL in the dimensions of the “role limitations due to physical” (p < 0.03), and social functioning (p < 0.04). Empowering the parents by helping them to actively seek and maintain social support is an important step in improving the health related quality of life.
AB - The study was conducted to assess the health related quality of life of the parents of children with inborn errors of metabolism (IEM). The study was conducted at the Genetic and metabolic outpatient department of Sultan Qaboos University Hospital, Oman. The parents of children with metabolic diseases who were accompanying their children to the outpatient clinics were the samples. An explorative descriptive survey design and Convenient sampling technique were used to select the sample. Study included 72 parents of children with metabolic diseases aged between 20 and 55 years. The RAND 36-Item Health Survey version was used to assess the health related quality of life of parents. The results shows lower mean scores in subscales of ‘general health’ and vitality. Parents with higher educational levels showed higher levels of PCS and MCS scores than parents with lower educational levels. Parents with higher monthly income and younger age showed higher quality of life. A significant association was found between supporting persons and HQoL in the dimensions of the “role limitations due to physical” (p < 0.03), and social functioning (p < 0.04). Empowering the parents by helping them to actively seek and maintain social support is an important step in improving the health related quality of life.
KW - Child with metabolic disease
KW - Health related quality of life
KW - Parenting
UR - http://www.scopus.com/inward/record.url?scp=84979753677&partnerID=8YFLogxK
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U2 - 10.1016/j.dsx.2016.07.002
DO - 10.1016/j.dsx.2016.07.002
M3 - Article
C2 - 27477532
AN - SCOPUS:84979753677
SN - 1871-4021
VL - 11
SP - 25
EP - 29
JO - Diabetes and Metabolic Syndrome: Clinical Research and Reviews
JF - Diabetes and Metabolic Syndrome: Clinical Research and Reviews
IS - 1
ER -