Evaluating palliative care needs in middle eastern countries

Michael Silbermann; Regina M. Fink; Sung Joon Min; Mary P. Mancuso; Jeannine Brant; Ramzi Hajjar; Nesreen Al-Alfi; Lea Baider; Ibrahim Turker; Karima Elshamy; Ibtisam Ghrayeb; Mazin Al-Jadiry; Khaled Khader; Sultan Kav; Haris Charalambous; Ruchan Uslu; Rejin Kebudi; Gil Barsela; Nilgün Kuruku; Kamer Mutafoglu; Gulsin Ozalp-Senel; Amitai Oberman; Livia Kislev; Mohammad Khleif; Neophyta Keoppi; Sophia Nestoros; Rasha Fahmi Abdalla; Maryam Rassouli; Amira Morag; Ron Sabar; Omar Nimri; Mohammad Al-Qadire; Murad Al-Khalaileh; Mona Tayyem; Myrna Doumit; Rehana Punjwani; Osaid Rasheed; Fatimah Fallatah; Gulbeyaz Can; Jamila Ahmed; Debbie Strode

doi:10.1089/jpm.2014.0194

Evaluating palliative care needs in middle eastern countries

Michael Silbermann, Regina M. Fink^*, Sung Joon Min, Mary P. Mancuso, Jeannine Brant, Ramzi Hajjar, Nesreen Al-Alfi, Lea Baider, Ibrahim Turker, Karima Elshamy, Ibtisam Ghrayeb, Mazin Al-Jadiry, Khaled Khader, Sultan Kav, Haris Charalambous, Ruchan Uslu, Rejin Kebudi, Gil Barsela, Nilgün Kuruku, Kamer MutafogluGulsin Ozalp-Senel, Amitai Oberman, Livia Kislev, Mohammad Khleif, Neophyta Keoppi, Sophia Nestoros, Rasha Fahmi Abdalla, Maryam Rassouli, Amira Morag, Ron Sabar, Omar Nimri, Mohammad Al-Qadire, Murad Al-Khalaileh, Mona Tayyem, Myrna Doumit, Rehana Punjwani, Osaid Rasheed, Fatimah Fallatah, Gulbeyaz Can, Jamila Ahmed, Debbie Strode

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

49 Citations (Scopus)

Abstract

Background: Cancer incidence in Middle Eastern countries, most categorized as low-and middle-income, is predicted to double in the next 10 years, greater than in any other part of the world. While progress has been made in cancer diagnosis/treatment, much remains to be done to improve palliative care for the majority of patients with cancer who present with advanced disease.

Objective: To determine knowledge, beliefs, barriers, and resources regarding palliative care services in Middle Eastern countries and use findings to inform future educational and training activities.

Design: Descriptive survey.

Setting/Subjects: Fifteen Middle Eastern countries; convenience sample of 776 nurses (44.3%), physicians (38.3%) and psychosocial, academic, and other health care professionals (17.4%) employed in varied settings. Measurements: Palliative care needs assessment.

Results: Improved pain management services are key facilitators. Top barriers include lack of designated palliative care beds/services, community awareness, staff training, access to hospice services, and personnel/time. The nonexistence of functioning home-based and hospice services leaves families/providers unable to honor patient wishes. Respondents were least satisfied with discussions around advance directives and wish to learn more about palliative care focusing on communication techniques. Populations requiring special consideration comprise: patients with ethnic diversity, language barriers, and low literacy; pediatric and young adults; and the elderly.

Conclusions: The majority of Middle Eastern patients with cancer are treated in outlying regions; the community is pivotal and must be incorporated into future plans for developing palliative care services. Promoting palliative care education and certification for physicians and nurses is crucial; home-based and hospice services must be sustained.

Original language	English
Pages (from-to)	18-25
Number of pages	8
Journal	Journal of Palliative Medicine
Volume	18
Issue number	1
DOIs	https://doi.org/10.1089/jpm.2014.0194
Publication status	Published - Jan 1 2015
Externally published	Yes

ASJC Scopus subject areas

General Nursing
Anesthesiology and Pain Medicine

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1089/jpm.2014.0194

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Silbermann, M., Fink, R. M., Min, S. J., Mancuso, M. P., Brant, J., Hajjar, R., Al-Alfi, N., Baider, L., Turker, I., Elshamy, K., Ghrayeb, I., Al-Jadiry, M., Khader, K., Kav, S., Charalambous, H., Uslu, R., Kebudi, R., Barsela, G., Kuruku, N., ... Strode, D. (2015). Evaluating palliative care needs in middle eastern countries. Journal of Palliative Medicine, 18(1), 18-25. https://doi.org/10.1089/jpm.2014.0194

Silbermann, M, Fink, RM, Min, SJ, Mancuso, MP, Brant, J, Hajjar, R, Al-Alfi, N, Baider, L, Turker, I, Elshamy, K, Ghrayeb, I, Al-Jadiry, M, Khader, K, Kav, S, Charalambous, H, Uslu, R, Kebudi, R, Barsela, G, Kuruku, N, Mutafoglu, K, Ozalp-Senel, G, Oberman, A, Kislev, L, Khleif, M, Keoppi, N, Nestoros, S, Abdalla, RF, Rassouli, M, Morag, A, Sabar, R, Nimri, O, Al-Qadire, M, Al-Khalaileh, M, Tayyem, M, Doumit, M, Punjwani, R, Rasheed, O, Fallatah, F, Can, G, Ahmed, J & Strode, D 2015, 'Evaluating palliative care needs in middle eastern countries', Journal of Palliative Medicine, vol. 18, no. 1, pp. 18-25. https://doi.org/10.1089/jpm.2014.0194

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title = "Evaluating palliative care needs in middle eastern countries",

abstract = "Background: Cancer incidence in Middle Eastern countries, most categorized as low-and middle-income, is predicted to double in the next 10 years, greater than in any other part of the world. While progress has been made in cancer diagnosis/treatment, much remains to be done to improve palliative care for the majority of patients with cancer who present with advanced disease.Objective: To determine knowledge, beliefs, barriers, and resources regarding palliative care services in Middle Eastern countries and use findings to inform future educational and training activities.Design: Descriptive survey.Setting/Subjects: Fifteen Middle Eastern countries; convenience sample of 776 nurses (44.3%), physicians (38.3%) and psychosocial, academic, and other health care professionals (17.4%) employed in varied settings. Measurements: Palliative care needs assessment.Results: Improved pain management services are key facilitators. Top barriers include lack of designated palliative care beds/services, community awareness, staff training, access to hospice services, and personnel/time. The nonexistence of functioning home-based and hospice services leaves families/providers unable to honor patient wishes. Respondents were least satisfied with discussions around advance directives and wish to learn more about palliative care focusing on communication techniques. Populations requiring special consideration comprise: patients with ethnic diversity, language barriers, and low literacy; pediatric and young adults; and the elderly.Conclusions: The majority of Middle Eastern patients with cancer are treated in outlying regions; the community is pivotal and must be incorporated into future plans for developing palliative care services. Promoting palliative care education and certification for physicians and nurses is crucial; home-based and hospice services must be sustained.",

author = "Michael Silbermann and Fink, {Regina M.} and Min, {Sung Joon} and Mancuso, {Mary P.} and Jeannine Brant and Ramzi Hajjar and Nesreen Al-Alfi and Lea Baider and Ibrahim Turker and Karima Elshamy and Ibtisam Ghrayeb and Mazin Al-Jadiry and Khaled Khader and Sultan Kav and Haris Charalambous and Ruchan Uslu and Rejin Kebudi and Gil Barsela and Nilg{\"u}n Kuruku and Kamer Mutafoglu and Gulsin Ozalp-Senel and Amitai Oberman and Livia Kislev and Mohammad Khleif and Neophyta Keoppi and Sophia Nestoros and Abdalla, {Rasha Fahmi} and Maryam Rassouli and Amira Morag and Ron Sabar and Omar Nimri and Mohammad Al-Qadire and Murad Al-Khalaileh and Mona Tayyem and Myrna Doumit and Rehana Punjwani and Osaid Rasheed and Fatimah Fallatah and Gulbeyaz Can and Jamila Ahmed and Debbie Strode",

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AU - Silbermann, Michael

AU - Fink, Regina M.

AU - Min, Sung Joon

AU - Mancuso, Mary P.

AU - Brant, Jeannine

AU - Hajjar, Ramzi

AU - Al-Alfi, Nesreen

AU - Baider, Lea

AU - Turker, Ibrahim

AU - Elshamy, Karima

AU - Ghrayeb, Ibtisam

AU - Al-Jadiry, Mazin

AU - Khader, Khaled

AU - Kav, Sultan

AU - Charalambous, Haris

AU - Uslu, Ruchan

AU - Kebudi, Rejin

AU - Barsela, Gil

AU - Kuruku, Nilgün

AU - Mutafoglu, Kamer

AU - Ozalp-Senel, Gulsin

AU - Oberman, Amitai

AU - Kislev, Livia

AU - Khleif, Mohammad

AU - Keoppi, Neophyta

AU - Nestoros, Sophia

AU - Abdalla, Rasha Fahmi

AU - Rassouli, Maryam

AU - Morag, Amira

AU - Sabar, Ron

AU - Nimri, Omar

AU - Al-Qadire, Mohammad

AU - Al-Khalaileh, Murad

AU - Tayyem, Mona

AU - Doumit, Myrna

AU - Punjwani, Rehana

AU - Rasheed, Osaid

AU - Fallatah, Fatimah

AU - Can, Gulbeyaz

AU - Ahmed, Jamila

AU - Strode, Debbie

PY - 2015/1/1

Y1 - 2015/1/1

N2 - Background: Cancer incidence in Middle Eastern countries, most categorized as low-and middle-income, is predicted to double in the next 10 years, greater than in any other part of the world. While progress has been made in cancer diagnosis/treatment, much remains to be done to improve palliative care for the majority of patients with cancer who present with advanced disease.Objective: To determine knowledge, beliefs, barriers, and resources regarding palliative care services in Middle Eastern countries and use findings to inform future educational and training activities.Design: Descriptive survey.Setting/Subjects: Fifteen Middle Eastern countries; convenience sample of 776 nurses (44.3%), physicians (38.3%) and psychosocial, academic, and other health care professionals (17.4%) employed in varied settings. Measurements: Palliative care needs assessment.Results: Improved pain management services are key facilitators. Top barriers include lack of designated palliative care beds/services, community awareness, staff training, access to hospice services, and personnel/time. The nonexistence of functioning home-based and hospice services leaves families/providers unable to honor patient wishes. Respondents were least satisfied with discussions around advance directives and wish to learn more about palliative care focusing on communication techniques. Populations requiring special consideration comprise: patients with ethnic diversity, language barriers, and low literacy; pediatric and young adults; and the elderly.Conclusions: The majority of Middle Eastern patients with cancer are treated in outlying regions; the community is pivotal and must be incorporated into future plans for developing palliative care services. Promoting palliative care education and certification for physicians and nurses is crucial; home-based and hospice services must be sustained.

AB - Background: Cancer incidence in Middle Eastern countries, most categorized as low-and middle-income, is predicted to double in the next 10 years, greater than in any other part of the world. While progress has been made in cancer diagnosis/treatment, much remains to be done to improve palliative care for the majority of patients with cancer who present with advanced disease.Objective: To determine knowledge, beliefs, barriers, and resources regarding palliative care services in Middle Eastern countries and use findings to inform future educational and training activities.Design: Descriptive survey.Setting/Subjects: Fifteen Middle Eastern countries; convenience sample of 776 nurses (44.3%), physicians (38.3%) and psychosocial, academic, and other health care professionals (17.4%) employed in varied settings. Measurements: Palliative care needs assessment.Results: Improved pain management services are key facilitators. Top barriers include lack of designated palliative care beds/services, community awareness, staff training, access to hospice services, and personnel/time. The nonexistence of functioning home-based and hospice services leaves families/providers unable to honor patient wishes. Respondents were least satisfied with discussions around advance directives and wish to learn more about palliative care focusing on communication techniques. Populations requiring special consideration comprise: patients with ethnic diversity, language barriers, and low literacy; pediatric and young adults; and the elderly.Conclusions: The majority of Middle Eastern patients with cancer are treated in outlying regions; the community is pivotal and must be incorporated into future plans for developing palliative care services. Promoting palliative care education and certification for physicians and nurses is crucial; home-based and hospice services must be sustained.

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Evaluating palliative care needs in middle eastern countries

Abstract

ASJC Scopus subject areas

UN SDGs

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